---
_id: '11734'
abstract:
- lang: eng
text: Patient care for those affected by chronic pruritus is remarkably complex
due to its high prevalence and multifactorial nature. It requires a comprehensive
assessment of the patient’s medical history, extensive diagnostic procedures,
and long treatment duration, including management of possible accompanying disorders
such as sleep disturbances and mental distress. It is important to prioritize
patient’s needs when developing a therapeutic treatment plan. Standardized questionnaires
and scales should be used to better analyze the patient history, quality of life,
symptom intensity, and course of treatment. These can be distributed via digital
platforms, allowing for more effective communication between the treating agents
and gathering of large volumes of data in central databases. In today’s health
care system, it is essential for physicians with itch-related specializations
and specialized itch centers to cooperate. It is thus crucial to focus efforts
on the further development of specialized treatment centers and training courses
for medical practitioners. There are, however, various regulatory and economic
barriers to overcome in the modern health care system before patients with chronic
pruritus can be offered the best possible care. Accordingly, health care authorities
should be made aware of the difficulties associated with the management of chronic
pruritus and of the high individual and societal burden it represents.
author:
- first_name: Manuel P.
full_name: Pereira, Manuel P.
last_name: Pereira
- first_name: Sabine
full_name: Steinke, Sabine
last_name: Steinke
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Hartmut F.
full_name: Ständer, Hartmut F.
last_name: Ständer
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
- first_name: Matthias
full_name: Augustin, Matthias
last_name: Augustin
- first_name: Sonja
full_name: Ständer, Sonja
last_name: Ständer
citation:
ama: 'Pereira MP, Steinke S, Bruland P, et al. Management of chronic pruritus: from
the dermatological office to the specialized itch center: a review. Itch.
2017;2(2):e6-e6. doi:10.1097/itx.0000000000000006'
apa: 'Pereira, M. P., Steinke, S., Bruland, P., Ständer, H. F., Dugas, M., Augustin,
M., & Ständer, S. (2017). Management of chronic pruritus: from the dermatological
office to the specialized itch center: a review. Itch, 2(2), e6–e6.
https://doi.org/10.1097/itx.0000000000000006'
bjps: 'Pereira MP et al. (2017) Management of Chronic Pruritus: From
the Dermatological Office to the Specialized Itch Center: A Review. Itch
2, e6–e6.'
chicago: 'Pereira, Manuel P., Sabine Steinke, Philipp Bruland, Hartmut F. Ständer,
Martin Dugas, Matthias Augustin, and Sonja Ständer. “Management of Chronic Pruritus:
From the Dermatological Office to the Specialized Itch Center: A Review.” Itch
2, no. 2 (2017): e6–e6. https://doi.org/10.1097/itx.0000000000000006.'
chicago-de: 'Pereira, Manuel P., Sabine Steinke, Philipp Bruland, Hartmut F. Ständer,
Martin Dugas, Matthias Augustin und Sonja Ständer. 2017. Management of chronic
pruritus: from the dermatological office to the specialized itch center: a review.
Itch 2, Nr. 2: e6–e6. doi:10.1097/itx.0000000000000006,
.'
din1505-2-1: 'Pereira, Manuel P. ;
Steinke, Sabine ; Bruland,
Philipp ; Ständer, Hartmut F.
; Dugas, Martin ; Augustin,
Matthias ; Ständer, Sonja:
Management of chronic pruritus: from the dermatological office to the specialized
itch center: a review. In: Itch Bd. 2, Ovid Technologies (Wolters Kluwer
Health) (2017), Nr. 2, S. e6–e6'
havard: 'M.P. Pereira, S. Steinke, P. Bruland, H.F. Ständer, M. Dugas, M. Augustin,
S. Ständer, Management of chronic pruritus: from the dermatological office to
the specialized itch center: a review, Itch. 2 (2017) e6–e6.'
ieee: 'M. P. Pereira et al., “Management of chronic pruritus: from the dermatological
office to the specialized itch center: a review,” Itch, vol. 2, no. 2,
pp. e6–e6, 2017, doi: 10.1097/itx.0000000000000006.'
mla: 'Pereira, Manuel P., et al. “Management of Chronic Pruritus: From the Dermatological
Office to the Specialized Itch Center: A Review.” Itch, vol. 2, no. 2,
2017, pp. e6–e6, https://doi.org/10.1097/itx.0000000000000006.'
short: M.P. Pereira, S. Steinke, P. Bruland, H.F. Ständer, M. Dugas, M. Augustin,
S. Ständer, Itch 2 (2017) e6–e6.
ufg: 'Pereira, Manuel P. u. a.: Management of chronic pruritus: from the
dermatological office to the specialized itch center: a review, in: Itch
2 (2017), H. 2, S. e6–e6.'
van: 'Pereira MP, Steinke S, Bruland P, Ständer HF, Dugas M, Augustin M, et al.
Management of chronic pruritus: from the dermatological office to the specialized
itch center: a review. Itch. 2017;2(2):e6–e6.'
date_created: 2024-07-18T12:21:38Z
date_updated: 2024-07-18T12:23:00Z
department:
- _id: DEP5024
doi: 10.1097/itx.0000000000000006
extern: '1'
external_id:
pmid:
- PMC6372054
intvolume: ' 2'
issue: '2'
language:
- iso: eng
page: e6-e6
pmid: '1'
publication: Itch
publication_identifier:
eissn:
- 2380-5048
publication_status: published
publisher: Ovid Technologies (Wolters Kluwer Health)
status: public
title: 'Management of chronic pruritus: from the dermatological office to the specialized
itch center: a review'
type: scientific_journal_article
user_id: '83781'
volume: 2
year: '2017'
...
---
_id: '11743'
abstract:
- lang: eng
text: "Background: The term prurigo has been used for many decades in dermatology
without clear definition, and currently used terminology of prurigo is inconsistent
and confusing. Especially, itch-related prurigo remains unexplored regarding the
epidemiology, clinical profile, natural course, underlying causes, available treatments
and economic burden, although burdensome and difficult to treat.\r\n\r\nObjective:
To address these issues, the multicentre European Prurigo Project (EPP) was designed
to increase knowledge on chronic prurigo (CPG). In the first step, European experts
of the EADV Task Force Pruritus (TFP) aimed to achieve a consensus on the definition,
classification and terminology of CPG. Additionally, procedures of the cross-sectional
EPP were discussed and agreed upon.\r\n\r\nMethods: Discussions and surveys between
members of the TFP served as basis for a consensus conference. Using the Delphi
method, consensus was defined as an agreement ≥75% among the present members.\r\n\r\nResults:
Twenty-four members of the TFP participated in the consensus conference. Experts
consented that CPG should be used as an umbrella term for the range of clinical
manifestations (e.g. papular, nodular, plaque or umbilicated types). CPG is considered
a distinct disease defined by the presence of chronic pruritus for ≥6 weeks, history
and/or signs of repeated scratching and multiple localized/generalized pruriginous
skin lesions (whitish or pink papules, nodules and/or plaques). CPG occurs due
to a neuronal sensitization to itch and the development of an itch-scratch cycle.\r\n\r\nConclusion:
This new definition and terminology of CPG should be implemented in dermatology
to harmonize communication in the clinical routine, clinical trials and scientific
literature. Acute/subacute forms of prurigo are separated entities, which need
to be differentiated from CPG and will be discussed in a next step. In the near
future, the cross-sectional EPP will provide relevant clinical data on various
aspects of CPG leading to new directions in the scientific investigation of CGP."
author:
- first_name: M.P.
full_name: Pereira, M.P.
last_name: Pereira
- first_name: S.
full_name: Steinke, S.
last_name: Steinke
- first_name: C.
full_name: Zeidler, C.
last_name: Zeidler
- first_name: C.
full_name: Forner, C.
last_name: Forner
- first_name: C.
full_name: Riepe, C.
last_name: Riepe
- first_name: M.
full_name: Augustin, M.
last_name: Augustin
- first_name: S.
full_name: Bobko, S.
last_name: Bobko
- first_name: F.
full_name: Dalgard, F.
last_name: Dalgard
- first_name: J.
full_name: Elberling, J.
last_name: Elberling
- first_name: S.
full_name: Garcovich, S.
last_name: Garcovich
- first_name: U.
full_name: Gieler, U.
last_name: Gieler
- first_name: M.
full_name: Gonçalo, M.
last_name: Gonçalo
- first_name: J. A.
full_name: Halvorsen, J. A.
last_name: Halvorsen
- first_name: T.A.
full_name: Leslie, T.A.
last_name: Leslie
- first_name: M.
full_name: Metz, M.
last_name: Metz
- first_name: A.
full_name: Reich, A.
last_name: Reich
- first_name: E.
full_name: Şavk, E.
last_name: Şavk
- first_name: G.
full_name: Schneider, G.
last_name: Schneider
- first_name: E.
full_name: Serra‐Baldrich, E.
last_name: Serra‐Baldrich
- first_name: H.F.
full_name: Ständer, H.F.
last_name: Ständer
- first_name: M.
full_name: Streit, M.
last_name: Streit
- first_name: J.
full_name: Wallengren, J.
last_name: Wallengren
- first_name: K.
full_name: Weller, K.
last_name: Weller
- first_name: A.
full_name: Wollenberg, A.
last_name: Wollenberg
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: I.
full_name: Soto‐Rey, I.
last_name: Soto‐Rey
- first_name: M.
full_name: Storck, M.
last_name: Storck
- first_name: M.
full_name: Dugas, M.
last_name: Dugas
- first_name: E.
full_name: Weisshaar, E.
last_name: Weisshaar
- first_name: J.C.
full_name: Szepietowski, J.C.
last_name: Szepietowski
- first_name: F.J.
full_name: Legat, F.J.
last_name: Legat
- first_name: S.
full_name: Ständer, S.
last_name: Ständer
citation:
ama: 'Pereira MP, Steinke S, Zeidler C, et al. European academy of dermatology and
venereology European prurigo project: expert consensus on the definition, classification
and terminology of chronic prurigo. Journal of the European Academy of Dermatology
and Venereology. 2017;32(7):1059-1065. doi:10.1111/jdv.14570'
apa: 'Pereira, M. P., Steinke, S., Zeidler, C., Forner, C., Riepe, C., Augustin,
M., Bobko, S., Dalgard, F., Elberling, J., Garcovich, S., Gieler, U., Gonçalo,
M., Halvorsen, J. A., Leslie, T. A., Metz, M., Reich, A., Şavk, E., Schneider,
G., Serra‐Baldrich, E., … Ständer, S. (2017). European academy of dermatology
and venereology European prurigo project: expert consensus on the definition,
classification and terminology of chronic prurigo. Journal of the European
Academy of Dermatology and Venereology, 32(7), 1059–1065. https://doi.org/10.1111/jdv.14570'
bjps: 'Pereira MP et al. (2017) European Academy of Dermatology and
Venereology European Prurigo Project: Expert Consensus on the Definition, Classification
and Terminology of Chronic Prurigo. Journal of the European Academy of Dermatology
and Venereology 32, 1059–1065.'
chicago: 'Pereira, M.P., S. Steinke, C. Zeidler, C. Forner, C. Riepe, M. Augustin,
S. Bobko, et al. “European Academy of Dermatology and Venereology European Prurigo
Project: Expert Consensus on the Definition, Classification and Terminology of
Chronic Prurigo.” Journal of the European Academy of Dermatology and Venereology
32, no. 7 (2017): 1059–65. https://doi.org/10.1111/jdv.14570.'
chicago-de: 'Pereira, M.P., S. Steinke, C. Zeidler, C. Forner, C. Riepe, M. Augustin,
S. Bobko, u. a. 2017. European academy of dermatology and venereology European
prurigo project: expert consensus on the definition, classification and terminology
of chronic prurigo. Journal of the European Academy of Dermatology and Venereology
32, Nr. 7: 1059–1065. doi:10.1111/jdv.14570,
.'
din1505-2-1: 'Pereira,
M.P. ; Steinke, S. ; Zeidler, C. ; Forner,
C. ; Riepe, C. ; Augustin,
M. ; Bobko, S. ; Dalgard,
F. ; u. a.: European academy of dermatology and venereology European
prurigo project: expert consensus on the definition, classification and terminology
of chronic prurigo. In: Journal of the European Academy of Dermatology and
Venereology Bd. 32. Oxford, Wiley (2017), Nr. 7, S. 1059–1065'
havard: 'M.P. Pereira, S. Steinke, C. Zeidler, C. Forner, C. Riepe, M. Augustin,
S. Bobko, F. Dalgard, J. Elberling, S. Garcovich, U. Gieler, M. Gonçalo, J.A.
Halvorsen, T.A. Leslie, M. Metz, A. Reich, E. Şavk, G. Schneider, E. Serra‐Baldrich,
H.F. Ständer, M. Streit, J. Wallengren, K. Weller, A. Wollenberg, P. Bruland,
I. Soto‐Rey, M. Storck, M. Dugas, E. Weisshaar, J.C. Szepietowski, F.J. Legat,
S. Ständer, European academy of dermatology and venereology European prurigo project:
expert consensus on the definition, classification and terminology of chronic
prurigo, Journal of the European Academy of Dermatology and Venereology. 32 (2017)
1059–1065.'
ieee: 'M. P. Pereira et al., “European academy of dermatology and venereology
European prurigo project: expert consensus on the definition, classification and
terminology of chronic prurigo,” Journal of the European Academy of Dermatology
and Venereology, vol. 32, no. 7, pp. 1059–1065, 2017, doi: 10.1111/jdv.14570.'
mla: 'Pereira, M. P., et al. “European Academy of Dermatology and Venereology European
Prurigo Project: Expert Consensus on the Definition, Classification and Terminology
of Chronic Prurigo.” Journal of the European Academy of Dermatology and Venereology,
vol. 32, no. 7, 2017, pp. 1059–65, https://doi.org/10.1111/jdv.14570.'
short: M.P. Pereira, S. Steinke, C. Zeidler, C. Forner, C. Riepe, M. Augustin, S.
Bobko, F. Dalgard, J. Elberling, S. Garcovich, U. Gieler, M. Gonçalo, J.A. Halvorsen,
T.A. Leslie, M. Metz, A. Reich, E. Şavk, G. Schneider, E. Serra‐Baldrich, H.F.
Ständer, M. Streit, J. Wallengren, K. Weller, A. Wollenberg, P. Bruland, I. Soto‐Rey,
M. Storck, M. Dugas, E. Weisshaar, J.C. Szepietowski, F.J. Legat, S. Ständer,
Journal of the European Academy of Dermatology and Venereology 32 (2017) 1059–1065.
ufg: 'Pereira, M.P. u. a.: European academy of dermatology and venereology
European prurigo project: expert consensus on the definition, classification and
terminology of chronic prurigo, in: Journal of the European Academy of Dermatology
and Venereology 32 (2017), H. 7, S. 1059–1065.'
van: 'Pereira MP, Steinke S, Zeidler C, Forner C, Riepe C, Augustin M, et al. European
academy of dermatology and venereology European prurigo project: expert consensus
on the definition, classification and terminology of chronic prurigo. Journal
of the European Academy of Dermatology and Venereology. 2017;32(7):1059–65.'
date_created: 2024-07-18T13:19:29Z
date_updated: 2024-07-18T13:22:20Z
department:
- _id: DEP5024
doi: 10.1111/jdv.14570
extern: '1'
external_id:
pmid:
- '28857299'
intvolume: ' 32'
issue: '7'
language:
- iso: eng
page: 1059-1065
place: Oxford
pmid: '1'
publication: Journal of the European Academy of Dermatology and Venereology
publication_identifier:
eissn:
- 1468-3083
issn:
- 0926-9959
publication_status: published
publisher: Wiley
status: public
title: 'European academy of dermatology and venereology European prurigo project:
expert consensus on the definition, classification and terminology of chronic prurigo'
type: scientific_journal_article
user_id: '83781'
volume: 32
year: '2017'
...
---
_id: '11744'
abstract:
- lang: ger
text: Chronischer Pruritus ist ein hochprävalentes und multifaktorielles Symptom,
das hohe Anforderungen an die Diagnostik, Therapie und Beachtung von Begleiterscheinungen
(reduzierte Lebensqualität, Schlafstörungen, psychische Faktoren) stellt. Die
Versorgung der Patienten ist daher komplex und bedarf auch einer Betrachtung individueller
Therapieziele. Neben der Pruritusfreiheit scheinen insbesondere eine Aufklärung
der Ursachen sowie ein vertrauensvolles Arzt-Patienten-Verhältnis relevant. Um
diesem gerecht zu werden, empfiehlt sich der gezielte Einsatz von Fragebögen zur
strukturierten Erhebung von Anamnese, Pruritusintensität, Lebensqualität und Therapieverlauf
in der Klinik und Praxis. Dennoch bestehen weiterhin viele administrative und
ökonomische Hürden im Gesundheitssystem, um Patienten mit chronischem Pruritus
die bestmögliche oder durch Leitlinien empfohlene Versorgung anzubieten. Der Ausbau
spezialisierter Zentren und die Schulung von Behandlern sind daher dringend erforderlich.
- lang: eng
text: Chronic pruritus is a highly prevalent, multifactorial symptom requiring extensive
diagnostics, treatment and consideration of accompanying symptoms (reduced quality
of life, sleep disorders, psychic factors). Patient care is thus complex and requires
consideration of individual treatment goals. Patients indicate their wish for
a symptom-free life an explanation of the causes and a trustful physician–patient
relationship. The targeted use of questionnaires is thus advisable in order to
structurally survey the history, pruritus intensity, quality of life and treatment
progression. Nevertheless, there are many administrative and economical hurdles
in the health care system to overcome in order to provide patients with chronic
pruritus the best possible care, also per the recommended guidelines. The development
of specialized centers and training courses for medical practitioners is thus
urgently needed.
alternative_title:
- Versorgung in der Praxis
author:
- first_name: S.
full_name: Ständer, S.
last_name: Ständer
- first_name: H. F.
full_name: Ständer, H. F.
last_name: Ständer
- first_name: S.
full_name: Steinke, S.
last_name: Steinke
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: M.
full_name: Dugas, M.
last_name: Dugas
- first_name: M.
full_name: Augustin, M.
last_name: Augustin
citation:
ama: Ständer S, Ständer HF, Steinke S, Bruland P, Dugas M, Augustin M. Chronischer
Pruritus. Der Hautarzt. 2016;67(8):640-647. doi:10.1007/s00105-016-3829-8
apa: Ständer, S., Ständer, H. F., Steinke, S., Bruland, P., Dugas, M., & Augustin,
M. (2016). Chronischer Pruritus. Der Hautarzt, 67(8), 640–647. https://doi.org/10.1007/s00105-016-3829-8
bjps: Ständer S et al. (2016) Chronischer Pruritus. Der Hautarzt
67, 640–647.
chicago: 'Ständer, S., H. F. Ständer, S. Steinke, Philipp Bruland, M. Dugas, and
M. Augustin. “Chronischer Pruritus.” Der Hautarzt 67, no. 8 (2016): 640–47.
https://doi.org/10.1007/s00105-016-3829-8.'
chicago-de: 'Ständer, S., H. F. Ständer, S. Steinke, Philipp Bruland, M. Dugas und
M. Augustin. 2016. Chronischer Pruritus. Der Hautarzt 67, Nr. 8: 640–647.
doi:10.1007/s00105-016-3829-8,
.'
din1505-2-1: 'Ständer, S. ; Ständer, H. F. ; Steinke,
S. ; Bruland, Philipp ; Dugas, M. ; Augustin,
M.: Chronischer Pruritus. In: Der Hautarzt Bd. 67. Berlin, Springer
Science and Business Media LLC (2016), Nr. 8, S. 640–647'
havard: S. Ständer, H.F. Ständer, S. Steinke, P. Bruland, M. Dugas, M. Augustin,
Chronischer Pruritus, Der Hautarzt. 67 (2016) 640–647.
ieee: 'S. Ständer, H. F. Ständer, S. Steinke, P. Bruland, M. Dugas, and M. Augustin,
“Chronischer Pruritus,” Der Hautarzt, vol. 67, no. 8, pp. 640–647, 2016,
doi: 10.1007/s00105-016-3829-8.'
mla: Ständer, S., et al. “Chronischer Pruritus.” Der Hautarzt, vol. 67, no.
8, 2016, pp. 640–47, https://doi.org/10.1007/s00105-016-3829-8.
short: S. Ständer, H.F. Ständer, S. Steinke, P. Bruland, M. Dugas, M. Augustin,
Der Hautarzt 67 (2016) 640–647.
ufg: 'Ständer, S. u. a.: Chronischer Pruritus, in: Der Hautarzt 67
(2016), H. 8, S. 640–647.'
van: Ständer S, Ständer HF, Steinke S, Bruland P, Dugas M, Augustin M. Chronischer
Pruritus. Der Hautarzt. 2016;67(8):640–7.
date_created: 2024-07-18T13:23:28Z
date_updated: 2024-08-21T06:14:19Z
department:
- _id: DEP5024
doi: 10.1007/s00105-016-3829-8
extern: '1'
external_id:
pmid:
- '27316924'
intvolume: ' 67'
issue: '8'
language:
- iso: ger
page: 640-647
place: Berlin
pmid: '1'
publication: Der Hautarzt
publication_identifier:
eissn:
- 1432-1173
issn:
- 0017-8470
publication_status: published
publisher: Springer Science and Business Media LLC
status: public
title: Chronischer Pruritus
type: scientific_journal_article
user_id: '83781'
volume: 67
year: '2016'
...
---
_id: '11745'
abstract:
- lang: eng
text: "Background: Data capture is one of the most expensive phases during the conduct
of a clinical trial and the increasing use of electronic health records (EHR)
offers significant savings to clinical research. To facilitate these secondary
uses of routinely collected patient data, it is beneficial to know what data elements
are captured in clinical trials. Therefore our aim here is to determine the most
commonly used data elements in clinical trials and their availability in hospital
EHR systems.\r\n\r\nMethods: Case report forms for 23 clinical trials in differing
disease areas were analyzed. Through an iterative and consensus-based process
of medical informatics professionals from academia and trial experts from the
European pharmaceutical industry, data elements were compiled for all disease
areas and with special focus on the reporting of adverse events. Afterwards, data
elements were identified and statistics acquired from hospital sites providing
data to the EHR4CR project.\r\n\r\nResults: The analysis identified 133 unique
data elements. Fifty elements were congruent with a published data inventory for
patient recruitment and 83 new elements were identified for clinical trial execution,
including adverse event reporting. Demographic and laboratory elements lead the
list of available elements in hospitals EHR systems. For the reporting of serious
adverse events only very few elements could be identified in the patient records.\r\n\r\nConclusions:
Common data elements in clinical trials have been identified and their availability
in hospital systems elucidated. Several elements, often those related to reimbursement,
are frequently available whereas more specialized elements are ranked at the bottom
of the data inventory list. Hospitals that want to obtain the benefits of reusing
data for research from their EHR are now able to prioritize their efforts based
on this common data element list."
article_number: '159'
author:
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Mark
full_name: McGilchrist, Mark
last_name: McGilchrist
- first_name: Eric
full_name: Zapletal, Eric
last_name: Zapletal
- first_name: Dionisio
full_name: Acosta, Dionisio
last_name: Acosta
- first_name: Johann
full_name: Proeve, Johann
last_name: Proeve
- first_name: Scott
full_name: Askin, Scott
last_name: Askin
- first_name: Thomas
full_name: Ganslandt, Thomas
last_name: Ganslandt
- first_name: Justin
full_name: Doods, Justin
last_name: Doods
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
citation:
ama: Bruland P, McGilchrist M, Zapletal E, et al. Common data elements for secondary
use of electronic health record data for clinical trial execution and serious
adverse event reporting. BMC Medical Research Methodology. 2016;16(1).
doi:10.1186/s12874-016-0259-3
apa: Bruland, P., McGilchrist, M., Zapletal, E., Acosta, D., Proeve, J., Askin,
S., Ganslandt, T., Doods, J., & Dugas, M. (2016). Common data elements for
secondary use of electronic health record data for clinical trial execution and
serious adverse event reporting. BMC Medical Research Methodology, 16(1),
Article 159. https://doi.org/10.1186/s12874-016-0259-3
bjps: Bruland P et al. (2016) Common Data Elements for Secondary Use
of Electronic Health Record Data for Clinical Trial Execution and Serious Adverse
Event Reporting. BMC Medical Research Methodology 16.
chicago: Bruland, Philipp, Mark McGilchrist, Eric Zapletal, Dionisio Acosta, Johann
Proeve, Scott Askin, Thomas Ganslandt, Justin Doods, and Martin Dugas. “Common
Data Elements for Secondary Use of Electronic Health Record Data for Clinical
Trial Execution and Serious Adverse Event Reporting.” BMC Medical Research
Methodology 16, no. 1 (2016). https://doi.org/10.1186/s12874-016-0259-3.
chicago-de: Bruland, Philipp, Mark McGilchrist, Eric Zapletal, Dionisio Acosta,
Johann Proeve, Scott Askin, Thomas Ganslandt, Justin Doods und Martin Dugas. 2016.
Common data elements for secondary use of electronic health record data for clinical
trial execution and serious adverse event reporting. BMC Medical Research Methodology
16, Nr. 1. doi:10.1186/s12874-016-0259-3,
.
din1505-2-1: 'Bruland,
Philipp ; McGilchrist, Mark
; Zapletal, Eric ; Acosta,
Dionisio ; Proeve, Johann
; Askin, Scott ; Ganslandt,
Thomas ; Doods, Justin ;
u. a.: Common data elements for secondary use of electronic health record
data for clinical trial execution and serious adverse event reporting. In: BMC
Medical Research Methodology Bd. 16. London, Springer Science and Business
Media LLC (2016), Nr. 1'
havard: P. Bruland, M. McGilchrist, E. Zapletal, D. Acosta, J. Proeve, S. Askin,
T. Ganslandt, J. Doods, M. Dugas, Common data elements for secondary use of electronic
health record data for clinical trial execution and serious adverse event reporting,
BMC Medical Research Methodology. 16 (2016).
ieee: 'P. Bruland et al., “Common data elements for secondary use of electronic
health record data for clinical trial execution and serious adverse event reporting,”
BMC Medical Research Methodology, vol. 16, no. 1, Art. no. 159, 2016, doi:
10.1186/s12874-016-0259-3.'
mla: Bruland, Philipp, et al. “Common Data Elements for Secondary Use of Electronic
Health Record Data for Clinical Trial Execution and Serious Adverse Event Reporting.”
BMC Medical Research Methodology, vol. 16, no. 1, 159, 2016, https://doi.org/10.1186/s12874-016-0259-3.
short: P. Bruland, M. McGilchrist, E. Zapletal, D. Acosta, J. Proeve, S. Askin,
T. Ganslandt, J. Doods, M. Dugas, BMC Medical Research Methodology 16 (2016).
ufg: 'Bruland, Philipp u. a.: Common data elements for secondary use of electronic
health record data for clinical trial execution and serious adverse event reporting,
in: BMC Medical Research Methodology 16 (2016), H. 1.'
van: Bruland P, McGilchrist M, Zapletal E, Acosta D, Proeve J, Askin S, et al. Common
data elements for secondary use of electronic health record data for clinical
trial execution and serious adverse event reporting. BMC Medical Research Methodology.
2016;16(1).
date_created: 2024-07-18T13:31:36Z
date_updated: 2024-07-18T13:33:42Z
department:
- _id: DEP5024
doi: 10.1186/s12874-016-0259-3
extern: '1'
intvolume: ' 16'
issue: '1'
keyword:
- Clinical trials
- Common data elements
- Data quality
- Electronic health records
- Metadata
- Secondary use
language:
- iso: eng
place: London
publication: BMC Medical Research Methodology
publication_identifier:
issn:
- 1471-2288
publication_status: published
publisher: Springer Science and Business Media LLC
status: public
title: Common data elements for secondary use of electronic health record data for
clinical trial execution and serious adverse event reporting
type: scientific_journal_article
user_id: '83781'
volume: 16
year: '2016'
...
---
_id: '11572'
abstract:
- lang: eng
text: 'The complex nature and difficult-to-establish aetiology of chronic pruritus
(CP) makes it challenging to provide medical care for patients with CP. This challenge
can only be met with a multidisciplinary approach. The first multidisciplinary
Itch Centre in Germany was established at the University of Münster in 2002 to
meet the needs of this patient population. More than 2,500 outpatients and 400
inpatients are diagnosed and receive treatment each year. To ensure evidence-based
medical care, an electronic system for medical documentation and patient-reported
outcomes was established. Automated data transfer to a research database enables
comprehensive data analysis. Our translational research has characterized peripheral
and central itch mechanisms, provided novel clustering of CP patients, and identified
novel target-specific therapies (e.g. neurokinin 1 receptor-antagonist). The multidisciplinary
approach, combined with basic, clinical and translational research, enables comprehensive
medical care of patients as well as implementation of high-quality experimental
and clinical studies. '
author:
- first_name: Sonja
full_name: Ständer, Sonja
last_name: Ständer
- first_name: 'Esther '
full_name: 'Pogatzki-Zahn, Esther '
last_name: Pogatzki-Zahn
- first_name: 'Astrid '
full_name: 'Stumpf, Astrid '
last_name: Stumpf
- first_name: 'Fleur '
full_name: 'Fritz, Fleur '
last_name: Fritz
- first_name: Bettina
full_name: Pfleiderer, Bettina
last_name: Pfleiderer
- first_name: Anika
full_name: Ritzkat, Anika
last_name: Ritzkat
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Tobias
full_name: Lotts, Tobias
last_name: Lotts
- first_name: Carsten
full_name: Müller-Tidow, Carsten
last_name: Müller-Tidow
- first_name: Gereon
full_name: Heuft, Gereon
last_name: Heuft
- first_name: 'Hermann-Joseph '
full_name: 'Pavenstädt, Hermann-Joseph '
last_name: Pavenstädt
- first_name: Gudrun
full_name: Schneider, Gudrun
last_name: Schneider
- first_name: 'Hugo '
full_name: 'Van Aken, Hugo '
last_name: Van Aken
- first_name: Walter
full_name: Heindel, Walter
last_name: Heindel
- first_name: Heinz
full_name: Wiendl, Heinz
last_name: Wiendl
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
- first_name: Thomas A.
full_name: Luger, Thomas A.
last_name: Luger
citation:
ama: 'Ständer S, Pogatzki-Zahn E, Stumpf A, et al. Facing the challenges of chronic
pruritus: a report from a multi-disciplinary medical itch centre in Germany.
Acta dermato-venereologica : a journal for clinical and experimental research
in the field of dermatology and venereology. 2015;95(3):266-271. doi:10.2340/00015555-1949 '
apa: 'Ständer, S., Pogatzki-Zahn, E., Stumpf, A., Fritz, F., Pfleiderer, B., Ritzkat,
A., Bruland, P., Lotts, T., Müller-Tidow, C., Heuft, G., Pavenstädt, H.-J., Schneider,
G., Van Aken, H., Heindel, W., Wiendl, H., Dugas, M., & Luger, T. A. (2015).
Facing the challenges of chronic pruritus: a report from a multi-disciplinary
medical itch centre in Germany. Acta Dermato-Venereologica : A Journal for
Clinical and Experimental Research in the Field of Dermatology and Venereology,
95(3), 266–271. https://doi.org/10.2340/00015555-1949
'
bjps: 'Ständer S et al. (2015) Facing the Challenges of Chronic Pruritus:
A Report from a Multi-Disciplinary Medical Itch Centre in Germany. Acta dermato-venereologica :
a journal for clinical and experimental research in the field of dermatology and
venereology 95, 266–271.'
chicago: 'Ständer, Sonja, Esther Pogatzki-Zahn, Astrid Stumpf, Fleur Fritz, Bettina
Pfleiderer, Anika Ritzkat, Philipp Bruland, et al. “Facing the Challenges of Chronic
Pruritus: A Report from a Multi-Disciplinary Medical Itch Centre in Germany.”
Acta Dermato-Venereologica : A Journal for Clinical and Experimental Research
in the Field of Dermatology and Venereology 95, no. 3 (2015): 266–71. https://doi.org/10.2340/00015555-1949 .'
chicago-de: 'Ständer, Sonja, Esther Pogatzki-Zahn, Astrid Stumpf, Fleur Fritz,
Bettina Pfleiderer, Anika Ritzkat, Philipp Bruland, u. a. 2015. Facing the challenges
of chronic pruritus: a report from a multi-disciplinary medical itch centre in
Germany. Acta dermato-venereologica : a journal for clinical and experimental
research in the field of dermatology and venereology 95, Nr. 3: 266–271. doi:10.2340/00015555-1949 , .'
din1505-2-1: 'Ständer,
Sonja ; Pogatzki-Zahn, Esther
; Stumpf, Astrid ; Fritz,
Fleur ; Pfleiderer, Bettina
; Ritzkat, Anika ; Bruland,
Philipp ; Lotts, Tobias ;
u. a.: Facing the challenges of chronic pruritus: a report from a multi-disciplinary
medical itch centre in Germany. In: Acta dermato-venereologica : a journal
for clinical and experimental research in the field of dermatology and venereology
Bd. 95 (2015), Nr. 3, S. 266–271'
havard: 'S. Ständer, E. Pogatzki-Zahn, A. Stumpf, F. Fritz, B. Pfleiderer, A. Ritzkat,
P. Bruland, T. Lotts, C. Müller-Tidow, G. Heuft, H.-J. Pavenstädt, G. Schneider,
H. Van Aken, W. Heindel, H. Wiendl, M. Dugas, T.A. Luger, Facing the challenges
of chronic pruritus: a report from a multi-disciplinary medical itch centre in
Germany., Acta Dermato-Venereologica : A Journal for Clinical and Experimental
Research in the Field of Dermatology and Venereology. 95 (2015) 266–271.'
ieee: 'S. Ständer et al., “Facing the challenges of chronic pruritus: a report
from a multi-disciplinary medical itch centre in Germany.,” Acta dermato-venereologica :
a journal for clinical and experimental research in the field of dermatology and
venereology, vol. 95, no. 3, pp. 266–271, 2015, doi: 10.2340/00015555-1949 .'
mla: 'Ständer, Sonja, et al. “Facing the Challenges of Chronic Pruritus: A Report
from a Multi-Disciplinary Medical Itch Centre in Germany.” Acta Dermato-Venereologica :
A Journal for Clinical and Experimental Research in the Field of Dermatology and
Venereology, vol. 95, no. 3, 2015, pp. 266–71, https://doi.org/10.2340/00015555-1949 .'
short: 'S. Ständer, E. Pogatzki-Zahn, A. Stumpf, F. Fritz, B. Pfleiderer, A. Ritzkat,
P. Bruland, T. Lotts, C. Müller-Tidow, G. Heuft, H.-J. Pavenstädt, G. Schneider,
H. Van Aken, W. Heindel, H. Wiendl, M. Dugas, T.A. Luger, Acta Dermato-Venereologica :
A Journal for Clinical and Experimental Research in the Field of Dermatology and
Venereology 95 (2015) 266–271.'
ufg: 'Ständer, Sonja u. a.: Facing the challenges of chronic pruritus: a
report from a multi-disciplinary medical itch centre in Germany., in: Acta
dermato-venereologica : a journal for clinical and experimental research in the
field of dermatology and venereology 95 (2015), H. 3, S. 266–271.'
van: 'Ständer S, Pogatzki-Zahn E, Stumpf A, Fritz F, Pfleiderer B, Ritzkat A, et
al. Facing the challenges of chronic pruritus: a report from a multi-disciplinary
medical itch centre in Germany. Acta dermato-venereologica : a journal for clinical
and experimental research in the field of dermatology and venereology. 2015;95(3):266–71.'
date_created: 2024-06-24T07:34:42Z
date_updated: 2024-07-17T13:22:09Z
department:
- _id: DEP5000
- _id: DEP5024
doi: '10.2340/00015555-1949 '
extern: '1'
external_id:
pmid:
- '25136974'
intvolume: ' 95'
issue: '3'
language:
- iso: eng
page: 266-271
pmid: '1'
publication: ' Acta dermato-venereologica : a journal for clinical and experimental
research in the field of dermatology and venereology'
publication_identifier:
issn:
- 0001-5555
- 1651-2057
publication_status: published
status: public
title: 'Facing the challenges of chronic pruritus: a report from a multi-disciplinary
medical itch centre in Germany.'
type: journal_article
user_id: '83781'
volume: 95
year: '2015'
...
---
_id: '11575'
abstract:
- lang: eng
text: In the treatment of chronic pruritus-related, scratch-induced skin lesions
the categorization, counting and temporal comparison are common methodologies.
The observation requires a good memory and expertise in this field to gain comparable
findings for this time-consuming process. Digital image processing aims at supporting
such manual detections. The objective is to develop a software tool for automatic
image detection and comparison. The new photographic setting implies the usage
of markers to derive the brightness and size of lesions. MATLAB has been used
for the software development. The newly defined setting allows taking standardized
images of pruritus-associated cutaneous lesions for detection and comparison.
The tool named PIACS (Prurigo Image Analyzing and Comparing System) allows automatically
detecting, categorizing and comparing lesions based on digital images.
author:
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Waldemar
full_name: Hänse, Waldemar
last_name: Hänse
- first_name: Fiona
full_name: Schedel, Fiona
last_name: Schedel
- first_name: Sonja
full_name: Ständer, Sonja
last_name: Ständer
- first_name: Fleur
full_name: Fritz, Fleur
last_name: Fritz
citation:
ama: 'Bruland P, Hänse W, Schedel F, Ständer S, Fritz F. PIACS: A System for the
Automatic Detection, Categorization and Comparison of Scratch-Related Skin Lesions
in Dermatology. Studies in health technology and informatics. 2015;216:1042.'
apa: 'Bruland, P., Hänse, W., Schedel, F., Ständer, S., & Fritz, F. (2015).
PIACS: A System for the Automatic Detection, Categorization and Comparison of
Scratch-Related Skin Lesions in Dermatology. Studies in Health Technology and
Informatics, 216, 1042.'
bjps: 'Bruland P et al. (2015) PIACS: A System for the Automatic Detection,
Categorization and Comparison of Scratch-Related Skin Lesions in Dermatology.
Studies in health technology and informatics 216, 1042.'
chicago: 'Bruland, Philipp, Waldemar Hänse, Fiona Schedel, Sonja Ständer, and Fleur
Fritz. “PIACS: A System for the Automatic Detection, Categorization and Comparison
of Scratch-Related Skin Lesions in Dermatology.” Studies in Health Technology
and Informatics 216 (2015): 1042.'
chicago-de: 'Bruland, Philipp, Waldemar Hänse, Fiona Schedel, Sonja Ständer und
Fleur Fritz. 2015. PIACS: A System for the Automatic Detection, Categorization
and Comparison of Scratch-Related Skin Lesions in Dermatology. Studies in health
technology and informatics 216: 1042.'
din1505-2-1: 'Bruland, Philipp ; Hänse, Waldemar ; Schedel,
Fiona ; Ständer, Sonja ;
Fritz, Fleur: PIACS: A System for
the Automatic Detection, Categorization and Comparison of Scratch-Related Skin
Lesions in Dermatology. In: Studies in health technology and informatics
Bd. 216, IOS Press (2015), S. 1042'
havard: 'P. Bruland, W. Hänse, F. Schedel, S. Ständer, F. Fritz, PIACS: A System
for the Automatic Detection, Categorization and Comparison of Scratch-Related
Skin Lesions in Dermatology., Studies in Health Technology and Informatics. 216
(2015) 1042.'
ieee: 'P. Bruland, W. Hänse, F. Schedel, S. Ständer, and F. Fritz, “PIACS: A System
for the Automatic Detection, Categorization and Comparison of Scratch-Related
Skin Lesions in Dermatology.,” Studies in health technology and informatics,
vol. 216, p. 1042, 2015.'
mla: 'Bruland, Philipp, et al. “PIACS: A System for the Automatic Detection, Categorization
and Comparison of Scratch-Related Skin Lesions in Dermatology.” Studies in
Health Technology and Informatics, vol. 216, 2015, p. 1042.'
short: P. Bruland, W. Hänse, F. Schedel, S. Ständer, F. Fritz, Studies in Health
Technology and Informatics 216 (2015) 1042.
ufg: 'Bruland, Philipp u. a.: PIACS: A System for the Automatic Detection,
Categorization and Comparison of Scratch-Related Skin Lesions in Dermatology.,
in: Studies in health technology and informatics 216 (2015), S. 1042.'
van: 'Bruland P, Hänse W, Schedel F, Ständer S, Fritz F. PIACS: A System for the
Automatic Detection, Categorization and Comparison of Scratch-Related Skin Lesions
in Dermatology. Studies in health technology and informatics. 2015;216:1042.'
date_created: 2024-06-24T07:36:14Z
date_updated: 2024-07-18T13:45:10Z
department:
- _id: DEP5024
external_id:
pmid:
- '26262341'
intvolume: ' 216'
language:
- iso: eng
page: '1042'
pmid: '1'
publication: Studies in health technology and informatics
publication_identifier:
eissn:
- 1879-8365
issn:
- 0926-9630
publication_status: published
publisher: IOS Press
status: public
title: 'PIACS: A System for the Automatic Detection, Categorization and Comparison
of Scratch-Related Skin Lesions in Dermatology.'
type: journal_article
user_id: '83781'
volume: 216
year: '2015'
...
---
_id: '11583'
abstract:
- lang: eng
text: 'Background: It is unknown if health-related quality of life (HRQoL) differs
between diseases associated with chronic pruritus (CP). Objective: To analyze
HRQoL in relation to age, gender, skin lesions (primary vs. scratch-induced secondary)
and itch intensity. Methods: Consecutive patients of our itch clinic were assessed
with the Dermatology Life Quality Index (DLQI) and visual analogue scale (VAS).
Results: In 510 CP patients (282 females; median age, 61.4 years), DLQI scores
and VAS values were highly correlated, irrespective of the type of skin lesion.
Overall, women had a lower HRQoL compared to men (females: 10.7 ± 6.7, males:
8.9 ± 6.7), but female gender was only associated with worse quality of life in
patients <65 years old. Conclusion: HRQoL impairment in CP is highly influenced
by pruritus intensity but not to the visible skin lesion or underlying cause.
With limitations to item bias, DLQI is a suitable instrument for estimating quality
of life impairment by CP.'
author:
- first_name: Benjamin
full_name: Warlich, Benjamin
last_name: Warlich
- first_name: Fleur
full_name: Fritz, Fleur
last_name: Fritz
- first_name: Nani
full_name: Osada, Nani
last_name: Osada
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Astrid
full_name: Stumpf, Astrid
last_name: Stumpf
- first_name: Gudrun
full_name: Schneider, Gudrun
last_name: Schneider
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
- first_name: Bettina
full_name: Pfleiderer, Bettina
last_name: Pfleiderer
- first_name: Sonja
full_name: Ständer, Sonja
last_name: Ständer
citation:
ama: 'Warlich B, Fritz F, Osada N, et al. Health-Related Quality of Life in Chronic
Pruritus: An Analysis Related to Disease Etiology, Clinical Skin Conditions and
Itch Intensity. Dermatology. 2015;231(3):253-259. doi:10.1159/000437206'
apa: 'Warlich, B., Fritz, F., Osada, N., Bruland, P., Stumpf, A., Schneider, G.,
Dugas, M., Pfleiderer, B., & Ständer, S. (2015). Health-Related Quality of
Life in Chronic Pruritus: An Analysis Related to Disease Etiology, Clinical Skin
Conditions and Itch Intensity. Dermatology, 231(3), 253–259. https://doi.org/10.1159/000437206'
bjps: 'Warlich B et al. (2015) Health-Related Quality of Life in Chronic
Pruritus: An Analysis Related to Disease Etiology, Clinical Skin Conditions and
Itch Intensity. Dermatology 231, 253–259.'
chicago: 'Warlich, Benjamin, Fleur Fritz, Nani Osada, Philipp Bruland, Astrid Stumpf,
Gudrun Schneider, Martin Dugas, Bettina Pfleiderer, and Sonja Ständer. “Health-Related
Quality of Life in Chronic Pruritus: An Analysis Related to Disease Etiology,
Clinical Skin Conditions and Itch Intensity.” Dermatology 231, no. 3 (2015):
253–59. https://doi.org/10.1159/000437206.'
chicago-de: 'Warlich, Benjamin, Fleur Fritz, Nani Osada, Philipp Bruland, Astrid
Stumpf, Gudrun Schneider, Martin Dugas, Bettina Pfleiderer und Sonja Ständer.
2015. Health-Related Quality of Life in Chronic Pruritus: An Analysis Related
to Disease Etiology, Clinical Skin Conditions and Itch Intensity. Dermatology
231, Nr. 3: 253–259. doi:10.1159/000437206,
.'
din1505-2-1: 'Warlich,
Benjamin ; Fritz, Fleur ;
Osada, Nani ; Bruland,
Philipp ; Stumpf, Astrid
; Schneider, Gudrun ; Dugas,
Martin ; Pfleiderer, Bettina
; u. a.: Health-Related Quality of Life in Chronic Pruritus: An Analysis
Related to Disease Etiology, Clinical Skin Conditions and Itch Intensity. In:
Dermatology Bd. 231. Basel ; Freiburg, Br. [u.a.] , S. Karger AG (2015),
Nr. 3, S. 253–259'
havard: 'B. Warlich, F. Fritz, N. Osada, P. Bruland, A. Stumpf, G. Schneider, M.
Dugas, B. Pfleiderer, S. Ständer, Health-Related Quality of Life in Chronic Pruritus:
An Analysis Related to Disease Etiology, Clinical Skin Conditions and Itch Intensity,
Dermatology. 231 (2015) 253–259.'
ieee: 'B. Warlich et al., “Health-Related Quality of Life in Chronic Pruritus:
An Analysis Related to Disease Etiology, Clinical Skin Conditions and Itch Intensity,”
Dermatology, vol. 231, no. 3, pp. 253–259, 2015, doi: 10.1159/000437206.'
mla: 'Warlich, Benjamin, et al. “Health-Related Quality of Life in Chronic Pruritus:
An Analysis Related to Disease Etiology, Clinical Skin Conditions and Itch Intensity.”
Dermatology, vol. 231, no. 3, 2015, pp. 253–59, https://doi.org/10.1159/000437206.'
short: B. Warlich, F. Fritz, N. Osada, P. Bruland, A. Stumpf, G. Schneider, M. Dugas,
B. Pfleiderer, S. Ständer, Dermatology 231 (2015) 253–259.
ufg: 'Warlich, Benjamin u. a.: Health-Related Quality of Life in Chronic
Pruritus: An Analysis Related to Disease Etiology, Clinical Skin Conditions and
Itch Intensity, in: Dermatology 231 (2015), H. 3, S. 253–259.'
van: 'Warlich B, Fritz F, Osada N, Bruland P, Stumpf A, Schneider G, et al. Health-Related
Quality of Life in Chronic Pruritus: An Analysis Related to Disease Etiology,
Clinical Skin Conditions and Itch Intensity. Dermatology. 2015;231(3):253–9.'
date_created: 2024-06-24T07:37:53Z
date_updated: 2024-07-17T13:43:20Z
department:
- _id: DEP5024
doi: 10.1159/000437206
extern: '1'
intvolume: ' 231'
issue: '3'
language:
- iso: eng
page: 253-259
place: 'Basel ; Freiburg, Br. [u.a.] '
publication: Dermatology
publication_identifier:
eissn:
- 1421-9832
issn:
- 1018-8665
publication_status: published
publisher: S. Karger AG
status: public
title: 'Health-Related Quality of Life in Chronic Pruritus: An Analysis Related to
Disease Etiology, Clinical Skin Conditions and Itch Intensity'
type: scientific_journal_article
user_id: '83781'
volume: 231
year: '2015'
...
---
_id: '11584'
abstract:
- lang: eng
text: "Background\r\n\r\nChronic pruritus is a frequently occurring symptom of various
dermatoses that causes a high burden and impaired quality of life. An effective
anti pruritic therapy is important for the patient, but its effectiveness is difficult
to evaluate. Diverse methods and interpretations of pruritic metrics are utilized
in clinical trials and the daily clinical practice in different countries, resulting
in difficulties comparing collected data.\r\nMethods\r\n\r\nWe founded a European
Network on Assessment of Severity and Burden of Pruritus (PruNet) that is supported
by the EADV. PruNet consists of 28 experts from 15 EU countries (21 dermatologists,
5 medical informaticists, 2 psychologists) and aims to unify the assessment of
itch in routine dermatological care. Following a preliminary survey, a consensus
conference was held in order to agree upon the prioritization of patient-reported
outcome tools.\r\nResults\r\n\r\nThrough utilizing the Delphi method, it was agreed
that tools for measuring itch intensity (ex. the visual analogue scale) and quality
of life (ex. ItchyQoL) are of primary importance and should urgently be foremost
validated.\r\nConclusion\r\n\r\nThe validation and harmonization of standards
are needed for the improvement of quality care for patients suffering from pruritic
dermatoses. This summer, the first validation studies in several EADV member countries
already began.\r\n"
author:
- first_name: S.
full_name: Ständer, S.
last_name: Ständer
- first_name: C.
full_name: Zeidler, C.
last_name: Zeidler
- first_name: C.
full_name: Riepe, C.
last_name: Riepe
- first_name: S.
full_name: Steinke, S.
last_name: Steinke
- first_name: F.
full_name: Fritz, F.
last_name: Fritz
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: I.
full_name: Soto‐Rey, I.
last_name: Soto‐Rey
- first_name: M.
full_name: Storck, M.
last_name: Storck
- first_name: T.
full_name: Agner, T.
last_name: Agner
- first_name: M.
full_name: Augustin, M.
last_name: Augustin
- first_name: C.
full_name: Blome, C.
last_name: Blome
- first_name: F.
full_name: Dalgard, F.
last_name: Dalgard
- first_name: A.W.M.
full_name: Evers, A.W.M.
last_name: Evers
- first_name: S.
full_name: Garcovich, S.
last_name: Garcovich
- first_name: M.
full_name: Gonçalo, M.
last_name: Gonçalo
- first_name: J.
full_name: Lambert, J.
last_name: Lambert
- first_name: F.J.
full_name: Legat, F.J.
last_name: Legat
- first_name: T.
full_name: Leslie, T.
last_name: Leslie
- first_name: L.
full_name: Misery, L.
last_name: Misery
- first_name: U.
full_name: Raap, U.
last_name: Raap
- first_name: A.
full_name: Reich, A.
last_name: Reich
- first_name: E.
full_name: Şavk, E.
last_name: Şavk
- first_name: M.
full_name: Streit, M.
last_name: Streit
- first_name: E.
full_name: Serra‐Baldrich, E.
last_name: Serra‐Baldrich
- first_name: J.
full_name: Szepietowski, J.
last_name: Szepietowski
- first_name: J.
full_name: Wallengren, J.
last_name: Wallengren
- first_name: E.
full_name: Weisshaar, E.
last_name: Weisshaar
- first_name: M.
full_name: Dugas, M.
last_name: Dugas
citation:
ama: 'Ständer S, Zeidler C, Riepe C, et al. European EADV network on assessment
of severity and burden of Pruritus (PruNet): first meeting on outcome tools. Journal
of the European Academy of Dermatology and Venereology. 2015;30(7):1144-1147.
doi:10.1111/jdv.13296'
apa: 'Ständer, S., Zeidler, C., Riepe, C., Steinke, S., Fritz, F., Bruland, P.,
Soto‐Rey, I., Storck, M., Agner, T., Augustin, M., Blome, C., Dalgard, F., Evers,
A. W. M., Garcovich, S., Gonçalo, M., Lambert, J., Legat, F. J., Leslie, T., Misery,
L., … Dugas, M. (2015). European EADV network on assessment of severity and burden
of Pruritus (PruNet): first meeting on outcome tools. Journal of the European
Academy of Dermatology and Venereology, 30(7), 1144–1147. https://doi.org/10.1111/jdv.13296'
bjps: 'Ständer S et al. (2015) European EADV Network on Assessment
of Severity and Burden of Pruritus (PruNet): First Meeting on Outcome Tools. Journal
of the European Academy of Dermatology and Venereology 30, 1144–1147.'
chicago: 'Ständer, S., C. Zeidler, C. Riepe, S. Steinke, F. Fritz, Philipp Bruland,
I. Soto‐Rey, et al. “European EADV Network on Assessment of Severity and Burden
of Pruritus (PruNet): First Meeting on Outcome Tools.” Journal of the European
Academy of Dermatology and Venereology 30, no. 7 (2015): 1144–47. https://doi.org/10.1111/jdv.13296.'
chicago-de: 'Ständer, S., C. Zeidler, C. Riepe, S. Steinke, F. Fritz, Philipp Bruland,
I. Soto‐Rey, u. a. 2015. European EADV network on assessment of severity and burden
of Pruritus (PruNet): first meeting on outcome tools. Journal of the European
Academy of Dermatology and Venereology 30, Nr. 7: 1144–1147. doi:10.1111/jdv.13296,
.'
din1505-2-1: 'Ständer,
S. ; Zeidler, C. ; Riepe, C. ; Steinke,
S. ; Fritz, F. ; Bruland,
Philipp ; Soto‐Rey, I. ;
Storck, M. ; u. a.: European
EADV network on assessment of severity and burden of Pruritus (PruNet): first
meeting on outcome tools. In: Journal of the European Academy of Dermatology
and Venereology Bd. 30. Oxford, Wiley-Blackwell (2015), Nr. 7, S. 1144–1147'
havard: 'S. Ständer, C. Zeidler, C. Riepe, S. Steinke, F. Fritz, P. Bruland, I.
Soto‐Rey, M. Storck, T. Agner, M. Augustin, C. Blome, F. Dalgard, A.W.M. Evers,
S. Garcovich, M. Gonçalo, J. Lambert, F.J. Legat, T. Leslie, L. Misery, U. Raap,
A. Reich, E. Şavk, M. Streit, E. Serra‐Baldrich, J. Szepietowski, J. Wallengren,
E. Weisshaar, M. Dugas, European EADV network on assessment of severity and burden
of Pruritus (PruNet): first meeting on outcome tools, Journal of the European
Academy of Dermatology and Venereology. 30 (2015) 1144–1147.'
ieee: 'S. Ständer et al., “European EADV network on assessment of severity
and burden of Pruritus (PruNet): first meeting on outcome tools,” Journal of
the European Academy of Dermatology and Venereology, vol. 30, no. 7, pp. 1144–1147,
2015, doi: 10.1111/jdv.13296.'
mla: 'Ständer, S., et al. “European EADV Network on Assessment of Severity and Burden
of Pruritus (PruNet): First Meeting on Outcome Tools.” Journal of the European
Academy of Dermatology and Venereology, vol. 30, no. 7, 2015, pp. 1144–47,
https://doi.org/10.1111/jdv.13296.'
short: S. Ständer, C. Zeidler, C. Riepe, S. Steinke, F. Fritz, P. Bruland, I. Soto‐Rey,
M. Storck, T. Agner, M. Augustin, C. Blome, F. Dalgard, A.W.M. Evers, S. Garcovich,
M. Gonçalo, J. Lambert, F.J. Legat, T. Leslie, L. Misery, U. Raap, A. Reich, E.
Şavk, M. Streit, E. Serra‐Baldrich, J. Szepietowski, J. Wallengren, E. Weisshaar,
M. Dugas, Journal of the European Academy of Dermatology and Venereology 30 (2015)
1144–1147.
ufg: 'Ständer, S. u. a.: European EADV network on assessment of severity
and burden of Pruritus (PruNet): first meeting on outcome tools, in: Journal
of the European Academy of Dermatology and Venereology 30 (2015), H. 7, S.
1144–1147.'
van: 'Ständer S, Zeidler C, Riepe C, Steinke S, Fritz F, Bruland P, et al. European
EADV network on assessment of severity and burden of Pruritus (PruNet): first
meeting on outcome tools. Journal of the European Academy of Dermatology and Venereology.
2015;30(7):1144–7.'
date_created: 2024-06-24T07:38:03Z
date_updated: 2024-07-17T13:39:35Z
department:
- _id: DEP5024
doi: 10.1111/jdv.13296
extern: '1'
intvolume: ' 30'
issue: '7'
language:
- iso: eng
page: 1144-1147
place: Oxford
publication: Journal of the European Academy of Dermatology and Venereology
publication_identifier:
eissn:
- 1468-3083
issn:
- 0926-9959
publication_status: published
publisher: 'Wiley-Blackwell '
status: public
title: 'European EADV network on assessment of severity and burden of Pruritus (PruNet):
first meeting on outcome tools'
type: scientific_journal_article
user_id: '83781'
volume: 30
year: '2015'
...
---
_id: '11581'
author:
- first_name: A.
full_name: Stumpf, A.
last_name: Stumpf
- first_name: S.
full_name: Ständer, S.
last_name: Ständer
- first_name: B.
full_name: Warlich, B.
last_name: Warlich
- first_name: F.
full_name: Fritz, F.
last_name: Fritz
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: B.
full_name: Pfleiderer, B.
last_name: Pfleiderer
- first_name: G.
full_name: Heuft, G.
last_name: Heuft
- first_name: G.
full_name: Schneider, G.
last_name: Schneider
citation:
ama: 'Stumpf A, Ständer S, Warlich B, et al. Relations between the characteristics
and psychological comorbidities of chronic pruritus differ between men and women:
women are more anxious than men. The British journal of dermatology : BJD .
2014;172(5):1323-1328. doi:10.1111/bjd.13492'
apa: 'Stumpf, A., Ständer, S., Warlich, B., Fritz, F., Bruland, P., Pfleiderer,
B., Heuft, G., & Schneider, G. (2014). Relations between the characteristics
and psychological comorbidities of chronic pruritus differ between men and women:
women are more anxious than men. The British Journal of Dermatology : BJD ,
172(5), 1323–1328. https://doi.org/10.1111/bjd.13492'
bjps: 'Stumpf A et al. (2014) Relations between the Characteristics
and Psychological Comorbidities of Chronic Pruritus Differ between Men and Women:
Women Are More Anxious than Men. The British journal of dermatology : BJD
172, 1323–1328.'
chicago: 'Stumpf, A., S. Ständer, B. Warlich, F. Fritz, Philipp Bruland, B. Pfleiderer,
G. Heuft, and G. Schneider. “Relations between the Characteristics and Psychological
Comorbidities of Chronic Pruritus Differ between Men and Women: Women Are More
Anxious than Men.” The British Journal of Dermatology : BJD 172, no. 5
(2014): 1323–28. https://doi.org/10.1111/bjd.13492.'
chicago-de: 'Stumpf, A., S. Ständer, B. Warlich, F. Fritz, Philipp Bruland, B. Pfleiderer,
G. Heuft und G. Schneider. 2014. Relations between the characteristics and psychological
comorbidities of chronic pruritus differ between men and women: women are more
anxious than men. The British journal of dermatology : BJD 172, Nr. 5:
1323–1328. doi:10.1111/bjd.13492,
.'
din1505-2-1: 'Stumpf, A. ; Ständer,
S. ; Warlich, B. ; Fritz, F. ; Bruland,
Philipp ; Pfleiderer, B.
; Heuft, G. ; Schneider,
G.: Relations between the characteristics and psychological comorbidities
of chronic pruritus differ between men and women: women are more anxious than
men. In: The British journal of dermatology : BJD Bd. 172. Oxford, Oxford
University Press (OUP) (2014), Nr. 5, S. 1323–1328'
havard: 'A. Stumpf, S. Ständer, B. Warlich, F. Fritz, P. Bruland, B. Pfleiderer,
G. Heuft, G. Schneider, Relations between the characteristics and psychological
comorbidities of chronic pruritus differ between men and women: women are more
anxious than men, The British Journal of Dermatology : BJD . 172 (2014) 1323–1328.'
ieee: 'A. Stumpf et al., “Relations between the characteristics and psychological
comorbidities of chronic pruritus differ between men and women: women are more
anxious than men,” The British journal of dermatology : BJD , vol. 172,
no. 5, pp. 1323–1328, 2014, doi: 10.1111/bjd.13492.'
mla: 'Stumpf, A., et al. “Relations between the Characteristics and Psychological
Comorbidities of Chronic Pruritus Differ between Men and Women: Women Are More
Anxious than Men.” The British Journal of Dermatology : BJD , vol. 172,
no. 5, 2014, pp. 1323–28, https://doi.org/10.1111/bjd.13492.'
short: 'A. Stumpf, S. Ständer, B. Warlich, F. Fritz, P. Bruland, B. Pfleiderer,
G. Heuft, G. Schneider, The British Journal of Dermatology : BJD 172 (2014) 1323–1328.'
ufg: 'Stumpf, A. u. a.: Relations between the characteristics and psychological
comorbidities of chronic pruritus differ between men and women: women are more
anxious than men, in: The British journal of dermatology : BJD 172 (2014),
H. 5, S. 1323–1328.'
van: 'Stumpf A, Ständer S, Warlich B, Fritz F, Bruland P, Pfleiderer B, et al. Relations
between the characteristics and psychological comorbidities of chronic pruritus
differ between men and women: women are more anxious than men. The British journal
of dermatology : BJD . 2014;172(5):1323–8.'
date_created: 2024-06-24T07:37:30Z
date_updated: 2024-07-17T13:56:47Z
department:
- _id: DEP5024
doi: 10.1111/bjd.13492
extern: '1'
intvolume: ' 172'
issue: '5'
language:
- iso: eng
page: 1323-1328
place: Oxford
publication: 'The British journal of dermatology : BJD '
publication_identifier:
eissn:
- '1365-2133 '
issn:
- 0007-0963
publication_status: published
publisher: Oxford University Press (OUP)
status: public
title: 'Relations between the characteristics and psychological comorbidities of chronic
pruritus differ between men and women: women are more anxious than men'
type: scientific_journal_article
user_id: '83781'
volume: 172
year: '2014'
...
---
_id: '11588'
article_type: original
author:
- first_name: Philipp
full_name: Bruland, Philipp
last_name: Bruland
- first_name: Christian
full_name: Forster, Christian
last_name: Forster
- first_name: Bernhard
full_name: Breil, Bernhard
last_name: Breil
- first_name: Sonja
full_name: Ständer, Sonja
last_name: Ständer
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
- first_name: Fleur
full_name: Fritz, Fleur
last_name: Fritz
citation:
ama: Bruland P, Forster C, Breil B, Ständer S, Dugas M, Fritz F. Does single-source
create an added value? Evaluating the impact of introducing x4T into the clinical
routine on workflow modifications, data quality and cost–benefit. International
Journal of Medical Informatics. 2014;83(12):915-928. doi:10.1016/j.ijmedinf.2014.08.007
apa: Bruland, P., Forster, C., Breil, B., Ständer, S., Dugas, M., & Fritz, F.
(2014). Does single-source create an added value? Evaluating the impact of introducing
x4T into the clinical routine on workflow modifications, data quality and cost–benefit.
International Journal of Medical Informatics, 83(12), 915–928. https://doi.org/10.1016/j.ijmedinf.2014.08.007
bjps: Bruland P et al. (2014) Does Single-Source Create an Added Value?
Evaluating the Impact of Introducing X4T into the Clinical Routine on Workflow
Modifications, Data Quality and Cost–Benefit. International Journal of Medical
Informatics 83, 915–928.
chicago: 'Bruland, Philipp, Christian Forster, Bernhard Breil, Sonja Ständer, Martin
Dugas, and Fleur Fritz. “Does Single-Source Create an Added Value? Evaluating
the Impact of Introducing X4T into the Clinical Routine on Workflow Modifications,
Data Quality and Cost–Benefit.” International Journal of Medical Informatics
83, no. 12 (2014): 915–28. https://doi.org/10.1016/j.ijmedinf.2014.08.007.'
chicago-de: 'Bruland, Philipp, Christian Forster, Bernhard Breil, Sonja Ständer,
Martin Dugas und Fleur Fritz. 2014. Does single-source create an added value?
Evaluating the impact of introducing x4T into the clinical routine on workflow
modifications, data quality and cost–benefit. International Journal of Medical
Informatics 83, Nr. 12: 915–928. doi:10.1016/j.ijmedinf.2014.08.007,
.'
din1505-2-1: 'Bruland, Philipp ; Forster, Christian ; Breil,
Bernhard ; Ständer, Sonja
; Dugas, Martin ; Fritz,
Fleur: Does single-source create an added value? Evaluating the impact
of introducing x4T into the clinical routine on workflow modifications, data quality
and cost–benefit. In: International Journal of Medical Informatics Bd.
83. Amsterdam, Elsevier BV (2014), Nr. 12, S. 915–928'
havard: P. Bruland, C. Forster, B. Breil, S. Ständer, M. Dugas, F. Fritz, Does single-source
create an added value? Evaluating the impact of introducing x4T into the clinical
routine on workflow modifications, data quality and cost–benefit, International
Journal of Medical Informatics. 83 (2014) 915–928.
ieee: 'P. Bruland, C. Forster, B. Breil, S. Ständer, M. Dugas, and F. Fritz, “Does
single-source create an added value? Evaluating the impact of introducing x4T
into the clinical routine on workflow modifications, data quality and cost–benefit,”
International Journal of Medical Informatics, vol. 83, no. 12, pp. 915–928,
2014, doi: 10.1016/j.ijmedinf.2014.08.007.'
mla: Bruland, Philipp, et al. “Does Single-Source Create an Added Value? Evaluating
the Impact of Introducing X4T into the Clinical Routine on Workflow Modifications,
Data Quality and Cost–Benefit.” International Journal of Medical Informatics,
vol. 83, no. 12, 2014, pp. 915–28, https://doi.org/10.1016/j.ijmedinf.2014.08.007.
short: P. Bruland, C. Forster, B. Breil, S. Ständer, M. Dugas, F. Fritz, International
Journal of Medical Informatics 83 (2014) 915–928.
ufg: 'Bruland, Philipp u. a.: Does single-source create an added value? Evaluating
the impact of introducing x4T into the clinical routine on workflow modifications,
data quality and cost–benefit, in: International Journal of Medical Informatics
83 (2014), H. 12, S. 915–928.'
van: Bruland P, Forster C, Breil B, Ständer S, Dugas M, Fritz F. Does single-source
create an added value? Evaluating the impact of introducing x4T into the clinical
routine on workflow modifications, data quality and cost–benefit. International
Journal of Medical Informatics. 2014;83(12):915–28.
date_created: 2024-06-24T07:38:45Z
date_updated: 2024-07-17T13:30:11Z
department:
- _id: DEP5024
doi: 10.1016/j.ijmedinf.2014.08.007
extern: '1'
intvolume: ' 83'
issue: '12'
language:
- iso: eng
page: 915-928
place: Amsterdam
publication: International Journal of Medical Informatics
publication_identifier:
eissn:
- 1872-8243
issn:
- 1386-5056
publication_status: published
publisher: Elsevier BV
quality_controlled: '1'
status: public
title: Does single-source create an added value? Evaluating the impact of introducing
x4T into the clinical routine on workflow modifications, data quality and cost–benefit
type: scientific_journal_article
user_id: '83781'
volume: 83
year: '2014'
...
---
_id: '11573'
abstract:
- lang: eng
text: 'Planning case report forms for data capture in clinical trials is a labor-insensitive
and not formalized process. These CRFs are often neither standardized nor using
defined data elements. Metadata registries as the NCI caDSR provide the capability
to create forms based on common data elements. However, an exchange of these forms
into clinical trial management systems through a standardized format like CDISC
ODM is currently not offered. Thus, our objectives were to develop a mapping model
between NCI forms and ODM. We analyzed 3012 NCI forms and included common data
elements regarding their frequency and uniqueness. In this paper, we have created
a mapping model between both formats and identified limitations in the conversion
process: Semantic codes requested from the caDSR registry did not allow a proper
mapping to ODM items and information like the number of module repetitions got
lost. Summarized, it can be stated that our mapping model is feasible. However,
mapping of semantic concepts in ODM needs to be specified more precisely.'
author:
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: Bernhard
full_name: Breil, Bernhard
last_name: Breil
- first_name: Fleur
full_name: Fritz, Fleur
last_name: Fritz
- first_name: Martin
full_name: Dugas, Martin
last_name: Dugas
citation:
ama: 'Bruland P, Breil B, Fritz F, Dugas M. Interoperability in clinical research:
from metadata registries to semantically annotated CDISC ODM. Studies in health
technology and informatics. 2012;180:564-568.'
apa: 'Bruland, P., Breil, B., Fritz, F., & Dugas, M. (2012). Interoperability
in clinical research: from metadata registries to semantically annotated CDISC
ODM. Studies in Health Technology and Informatics, 180, 564–568.'
bjps: 'Bruland P et al. (2012) Interoperability in Clinical Research:
From Metadata Registries to Semantically Annotated CDISC ODM. Studies in health
technology and informatics 180, 564–568.'
chicago: 'Bruland, Philipp, Bernhard Breil, Fleur Fritz, and Martin Dugas. “Interoperability
in Clinical Research: From Metadata Registries to Semantically Annotated CDISC
ODM.” Studies in Health Technology and Informatics 180 (2012): 564–68.'
chicago-de: 'Bruland, Philipp, Bernhard Breil, Fleur Fritz und Martin Dugas. 2012.
Interoperability in clinical research: from metadata registries to semantically
annotated CDISC ODM. Studies in health technology and informatics 180:
564–568.'
din1505-2-1: 'Bruland, Philipp ; Breil, Bernhard ; Fritz,
Fleur ; Dugas, Martin: Interoperability
in clinical research: from metadata registries to semantically annotated CDISC
ODM. In: Studies in health technology and informatics Bd. 180, IOS Press
(2012), S. 564–568'
havard: 'P. Bruland, B. Breil, F. Fritz, M. Dugas, Interoperability in clinical
research: from metadata registries to semantically annotated CDISC ODM., Studies
in Health Technology and Informatics. 180 (2012) 564–568.'
ieee: 'P. Bruland, B. Breil, F. Fritz, and M. Dugas, “Interoperability in clinical
research: from metadata registries to semantically annotated CDISC ODM.,” Studies
in health technology and informatics, vol. 180, pp. 564–568, 2012.'
mla: 'Bruland, Philipp, et al. “Interoperability in Clinical Research: From Metadata
Registries to Semantically Annotated CDISC ODM.” Studies in Health Technology
and Informatics, vol. 180, 2012, pp. 564–68.'
short: P. Bruland, B. Breil, F. Fritz, M. Dugas, Studies in Health Technology and
Informatics 180 (2012) 564–568.
ufg: 'Bruland, Philipp u. a.: Interoperability in clinical research: from
metadata registries to semantically annotated CDISC ODM., in: Studies in health
technology and informatics 180 (2012), S. 564–568.'
van: 'Bruland P, Breil B, Fritz F, Dugas M. Interoperability in clinical research:
from metadata registries to semantically annotated CDISC ODM. Studies in health
technology and informatics. 2012;180:564–8.'
date_created: 2024-06-24T07:34:50Z
date_updated: 2024-08-21T06:13:06Z
department:
- _id: DEP5024
external_id:
pmid:
- '22874254'
intvolume: ' 180'
language:
- iso: eng
page: 564-568
pmid: '1'
publication: Studies in health technology and informatics
publication_identifier:
eissn:
- 1879-8365
issn:
- 0926-9630
publication_status: published
publisher: IOS Press
status: public
title: 'Interoperability in clinical research: from metadata registries to semantically
annotated CDISC ODM.'
type: journal_article
user_id: '83781'
volume: 180
year: '2012'
...
---
_id: '11589'
abstract:
- lang: eng
text: 'Background: Semantic interoperability between routine healthcare and clinical
research is an unsolved issue, as information systems in the healthcare domain
still use proprietary and site-specific data models. However, information exchange
and data harmonization are essential for physicians and scientists if they want
to collect and analyze data from different hospitals in order to build up registries
and perform multicenter clinical trials. Consequently, there is a need for a standardized
metadata exchange based on common data models. Currently this is mainly done by
informatics experts instead of medical experts.Objectives: We
propose to enable physicians to exchange, rate, comment and discuss their own
medical data models in a collaborative web-based repository of medical forms in
a standardized format.Methods: Based on a comprehensive requirement
analysis, a web-based portal for medical data models was specified. In this context,
a data model is the technical specification (attributes, data types, value lists)
of a medical form without any layout information. The CDISC Operational Data Model
(ODM) was chosen as the appropriate format for the standardized representation
of data models. The system was implemented with Ruby on Rails and applies web
2.0 technologies to provide a community based solution. Forms from different source
systems – both routine care and clinical research – were converted into ODM format
and uploaded into the portal.Results: A portal for medical data
models based on ODM-files was implemented (http://www.medical-data-models.org).
Physicians are able to upload, comment, rate and download medical data models.
More than 250 forms with approximately 8000 items are provided in different views
(overview and detailed presentation) and in multiple languages. For instance,
the portal contains forms from clinical and research information systems.Conclusion:
The portal provides a system-independent repository for multilingual data models
in ODM format which can be used by physicians. It serves as a platform for discussion
and enables the exchange of multilingual medical data models in a standardized
way.'
alternative_title:
- A Novel Form-based Approachto Semantic Interoperability between Routine Health care
and Clinical Research
author:
- first_name: J.
full_name: Kenneweg, J.
last_name: Kenneweg
- first_name: F.
full_name: Fritz, F.
last_name: Fritz
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: D.
full_name: Doods, D.
last_name: Doods
- first_name: B.
full_name: Trinczek, B.
last_name: Trinczek
- first_name: M.
full_name: Dugas, M.
last_name: Dugas
- first_name: B.
full_name: Breil, B.
last_name: Breil
citation:
ama: 'Kenneweg J, Fritz F, Bruland P, et al. Multilingual Medical Data Models in
ODM Format. Applied clinical informatics : ACI ; official eJournal of IMIA
and AMDIS. 2012;03(03):276-289. doi:10.4338/aci-2012-03-ra-0011'
apa: 'Kenneweg, J., Fritz, F., Bruland, P., Doods, D., Trinczek, B., Dugas, M.,
& Breil, B. (2012). Multilingual Medical Data Models in ODM Format. Applied
Clinical Informatics : ACI ; Official EJournal of IMIA and AMDIS, 03(03),
276–289. https://doi.org/10.4338/aci-2012-03-ra-0011'
bjps: 'Kenneweg J et al. (2012) Multilingual Medical Data Models in
ODM Format. Applied clinical informatics : ACI ; official eJournal of IMIA
and AMDIS 03, 276–289.'
chicago: 'Kenneweg, J., F. Fritz, Philipp Bruland, D. Doods, B. Trinczek, M. Dugas,
and B. Breil. “Multilingual Medical Data Models in ODM Format.” Applied Clinical
Informatics : ACI ; Official EJournal of IMIA and AMDIS 03, no. 03 (2012):
276–89. https://doi.org/10.4338/aci-2012-03-ra-0011.'
chicago-de: 'Kenneweg, J., F. Fritz, Philipp Bruland, D. Doods, B. Trinczek, M.
Dugas und B. Breil. 2012. Multilingual Medical Data Models in ODM Format.
Applied clinical informatics : ACI ; official eJournal of IMIA and AMDIS 03,
Nr. 03: 276–289. doi:10.4338/aci-2012-03-ra-0011,
.'
din1505-2-1: 'Kenneweg, J. ; Fritz, F. ; Bruland,
Philipp ; Doods, D. ; Trinczek, B. ; Dugas,
M. ; Breil, B.: Multilingual
Medical Data Models in ODM Format. In: Applied clinical informatics : ACI ;
official eJournal of IMIA and AMDIS Bd. 03. Stuttgart, Schattauer (2012),
Nr. 03, S. 276–289'
havard: 'J. Kenneweg, F. Fritz, P. Bruland, D. Doods, B. Trinczek, M. Dugas, B.
Breil, Multilingual Medical Data Models in ODM Format, Applied Clinical Informatics :
ACI ; Official EJournal of IMIA and AMDIS. 03 (2012) 276–289.'
ieee: 'J. Kenneweg et al., “Multilingual Medical Data Models in ODM Format,”
Applied clinical informatics : ACI ; official eJournal of IMIA and AMDIS,
vol. 03, no. 03, pp. 276–289, 2012, doi: 10.4338/aci-2012-03-ra-0011.'
mla: 'Kenneweg, J., et al. “Multilingual Medical Data Models in ODM Format.”
Applied Clinical Informatics : ACI ; Official EJournal of IMIA and AMDIS,
vol. 03, no. 03, 2012, pp. 276–89, https://doi.org/10.4338/aci-2012-03-ra-0011.'
short: 'J. Kenneweg, F. Fritz, P. Bruland, D. Doods, B. Trinczek, M. Dugas, B. Breil,
Applied Clinical Informatics : ACI ; Official EJournal of IMIA and AMDIS 03
(2012) 276–289.'
ufg: 'Kenneweg, J. u. a.: Multilingual Medical Data Models in ODM Format,
in: Applied clinical informatics : ACI ; official eJournal of IMIA and AMDIS
03 (2012), H. 03, S. 276–289.'
van: 'Kenneweg J, Fritz F, Bruland P, Doods D, Trinczek B, Dugas M, et al. Multilingual
Medical Data Models in ODM Format. Applied clinical informatics : ACI ; official
eJournal of IMIA and AMDIS. 2012;03(03):276–89.'
date_created: 2024-06-24T07:38:57Z
date_updated: 2024-07-17T13:36:09Z
department:
- _id: DEP5024
doi: 10.4338/aci-2012-03-ra-0011
intvolume: ' 3'
issue: '03'
language:
- iso: eng
page: 276-289
place: Stuttgart
publication: ' Applied clinical informatics : ACI ; official eJournal of IMIA and
AMDIS'
publication_identifier:
eissn:
- 1869-0327
publication_status: published
publisher: Schattauer
status: public
title: Multilingual Medical Data Models in ODM Format
type: scientific_journal_article
user_id: '83781'
volume: '03'
year: '2012'
...
---
_id: '11742'
abstract:
- lang: eng
text: With a prevalence of 20%, chronic pruritus is a symptom of many diseases with
major impact on healthcare costs. The lack of specific therapeutic measures makes
the development of new drugs and their testing in clinical trials urgent. It is
not possible to measure pruritus in an objective way. For these reasons, it is
necessary to have a series of standardized measures to characterize pruritus in
a reliable way. Intensity scales such as the visual analog scale (VAS) are most
frequently used to document the course of the symptoms. However, for assessing
pruritus intensity, VAS is not an optimal instrument, although it cannot be dispensed
with. The VAS should be combined with other scales in clinical studies in order
to internally test the consistency of data. Other instruments for assessing intensity
and course of pruritus are in the process of development. Presently scratch activity
and scratch-associated lesions can be documented in a descriptive fashion. There
are some studies that have employed devices to document scratch activity; however,
methodological studies are not yet available. The patient-benefit index is an
indispensable tool in clinical trials. A questionnaire for gathering data on the
history and some pruritus-specific parameters has been developed and published.
Questionnaires on patient quality of life, anxiety and depression are helpful
in obtaining data on other cost-relevant parameters. A questionnaire on the quality
of life, for instance, can provide important help in the assessment of the burden
of the disease. The results of these questionnaires can be correlated with data
on pruritus intensity scales. The relevant questionnaires have been partially
digitalized so that they are available immediately as part of patient care. Additional
methodological developments and studies are required in order to define a robust
set of instruments for measuring pruritus in daily practice and in clinical studies.
alternative_title:
- Konsensuspaper der Initiative Pruritusparameter der Arbeitsgemeinschaft Pruritusforschung
(AGP)
author:
- first_name: S.
full_name: Ständer, S.
last_name: Ständer
- first_name: C.
full_name: Blome, C.
last_name: Blome
- first_name: B.
full_name: Breil, B.
last_name: Breil
- first_name: Philipp
full_name: Bruland, Philipp
id: '75847'
last_name: Bruland
orcid: 0000-0001-6939-7630
- first_name: U.
full_name: Darsow, U.
last_name: Darsow
- first_name: M.
full_name: Dugas, M.
last_name: Dugas
- first_name: A.
full_name: Evers, A.
last_name: Evers
- first_name: F.
full_name: Fritz, F.
last_name: Fritz
- first_name: M.
full_name: Metz, M.
last_name: Metz
- first_name: N.Q.
full_name: Phan, N.Q.
last_name: Phan
- first_name: U.
full_name: Raap, U.
last_name: Raap
- first_name: A.
full_name: Reich, A.
last_name: Reich
- first_name: G.
full_name: Schneider, G.
last_name: Schneider
- first_name: S.
full_name: Steinke, S.
last_name: Steinke
- first_name: J.
full_name: Szepietowski, J.
last_name: Szepietowski
- first_name: E.
full_name: Weisshaar, E.
last_name: Weisshaar
- first_name: M.
full_name: Augustin, M.
last_name: Augustin
citation:
ama: Ständer S, Blome C, Breil B, et al. Erfassung von Pruritus – aktuelle Standards
und Implikationen für die Praxis. Der Hautarzt. 2012;63(7):521-531. doi:10.1007/s00105-011-2318-3
apa: Ständer, S., Blome, C., Breil, B., Bruland, P., Darsow, U., Dugas, M., Evers,
A., Fritz, F., Metz, M., Phan, N. Q., Raap, U., Reich, A., Schneider, G., Steinke,
S., Szepietowski, J., Weisshaar, E., & Augustin, M. (2012). Erfassung von
Pruritus – aktuelle Standards und Implikationen für die Praxis. Der Hautarzt,
63(7), 521–531. https://doi.org/10.1007/s00105-011-2318-3
bjps: Ständer S et al. (2012) Erfassung von Pruritus – aktuelle Standards
und Implikationen für die Praxis. Der Hautarzt 63, 521–531.
chicago: 'Ständer, S., C. Blome, B. Breil, Philipp Bruland, U. Darsow, M. Dugas,
A. Evers, et al. “Erfassung von Pruritus – aktuelle Standards und Implikationen
für die Praxis.” Der Hautarzt 63, no. 7 (2012): 521–31. https://doi.org/10.1007/s00105-011-2318-3.'
chicago-de: 'Ständer, S., C. Blome, B. Breil, Philipp Bruland, U. Darsow, M. Dugas,
A. Evers, u. a. 2012. Erfassung von Pruritus – aktuelle Standards und Implikationen
für die Praxis. Der Hautarzt 63, Nr. 7: 521–531. doi:10.1007/s00105-011-2318-3,
.'
din1505-2-1: 'Ständer,
S. ; Blome, C. ; Breil,
B. ; Bruland, Philipp ; Darsow, U. ; Dugas,
M. ; Evers, A. ; Fritz,
F. ; u. a.: Erfassung von Pruritus – aktuelle Standards und Implikationen
für die Praxis. In: Der Hautarzt Bd. 63. Berlin, Springer Science and Business
Media LLC (2012), Nr. 7, S. 521–531'
havard: S. Ständer, C. Blome, B. Breil, P. Bruland, U. Darsow, M. Dugas, A. Evers,
F. Fritz, M. Metz, N.Q. Phan, U. Raap, A. Reich, G. Schneider, S. Steinke, J.
Szepietowski, E. Weisshaar, M. Augustin, Erfassung von Pruritus – aktuelle Standards
und Implikationen für die Praxis, Der Hautarzt. 63 (2012) 521–531.
ieee: 'S. Ständer et al., “Erfassung von Pruritus – aktuelle Standards und
Implikationen für die Praxis,” Der Hautarzt, vol. 63, no. 7, pp. 521–531,
2012, doi: 10.1007/s00105-011-2318-3.'
mla: Ständer, S., et al. “Erfassung von Pruritus – aktuelle Standards und Implikationen
für die Praxis.” Der Hautarzt, vol. 63, no. 7, 2012, pp. 521–31, https://doi.org/10.1007/s00105-011-2318-3.
short: S. Ständer, C. Blome, B. Breil, P. Bruland, U. Darsow, M. Dugas, A. Evers,
F. Fritz, M. Metz, N.Q. Phan, U. Raap, A. Reich, G. Schneider, S. Steinke, J.
Szepietowski, E. Weisshaar, M. Augustin, Der Hautarzt 63 (2012) 521–531.
ufg: 'Ständer, S. u. a.: Erfassung von Pruritus – aktuelle Standards und
Implikationen für die Praxis, in: Der Hautarzt 63 (2012), H. 7, S. 521–531.'
van: Ständer S, Blome C, Breil B, Bruland P, Darsow U, Dugas M, et al. Erfassung
von Pruritus – aktuelle Standards und Implikationen für die Praxis. Der Hautarzt.
2012;63(7):521–31.
date_created: 2024-07-18T13:15:40Z
date_updated: 2024-07-18T13:18:15Z
department:
- _id: DEP5024
doi: 10.1007/s00105-011-2318-3
extern: '1'
external_id:
pmid:
- '22733240'
intvolume: ' 63'
issue: '7'
language:
- iso: ger
page: 521-531
place: Berlin
pmid: '1'
publication: Der Hautarzt
publication_identifier:
eissn:
- 1432-1173
issn:
- 0017-8470
publication_status: published
publisher: Springer Science and Business Media LLC
status: public
title: Erfassung von Pruritus – aktuelle Standards und Implikationen für die Praxis
type: scientific_journal_article
user_id: '83781'
volume: 63
year: '2012'
...